More Minis Dollhouses Posted November 25, 2015 Share Posted November 25, 2015 Hi everyone! I know I have been MIA on the forum and unfortunately, with my projects as well. I just wanted to post a quick update, so you guys don't think I have forgotten the forum or dollhouses (never!), Me and my husband have been going through a health related ordeal now for about three to four years. My husband's health had been declining significantly and we had gotten no answers as to what was going on. We have been from one specialist to another, all the way to the Mayo Clinic for help, with no avail. My husband is head strong though and he did his own research online, which took him a year to complete. He recently asked for specific blood tests to be performed and we finally have a diagnosis. A Typical Celiac Disease. The disease has progressed beyond the intestines and is affecting him neurologically. For this reason, they were unable to pinpoint what was going on since Celiac is commonly manifested through GI symptoms, which he hardly had. This is the reason why I have been MIA, on and off, on the forum and on my blog as well. It's still going to be a few months before I am able to be 100% back since my husband has to go through several invasive procedures in order for us to know the extent of the damage and the prognosis. He's had this illness for many years, unknowingly, but started having severe symptoms about four years ago. During that time he's had to go on disability, sleep with a CPap machine, has had vascular issues, neurological issues and even psychological issues. It was really going downhill for him. So even though we have bettered our health over all, through diet and exercise, we have this illness to contend with now. Though we are devastated with the diagnosis, at least we now have answers as to what was going on and we can do something about it. Sorry for the long post! I just wanted to know I miss you guys, the forum, my miniatures and working on dollhouses and I will not be gone forever! Quote Link to comment Share on other sites More sharing options...
KathieB Posted November 25, 2015 Share Posted November 25, 2015 Gina, so sorry to hear what you and DH are having to deal with, but glad you checked in. Have been wondering where you've been. 1 Quote Link to comment Share on other sites More sharing options...
Dalesq Posted November 25, 2015 Share Posted November 25, 2015 It sounds like things are improving for you both; I'm glad, and sorry you've been having to go through this. I was just checking your blog the other day for measurements for a house and grateful for that resource you created. We all go MIA now and then...don't worry about it. Glad you checked in! 1 Quote Link to comment Share on other sites More sharing options...
Sable Posted November 25, 2015 Share Posted November 25, 2015 It's amazing how we have to become our own advocates when it comes to our health. The ability to research on the Internet has helped so many in trying to find the root of our medical concerns. I have a skin condition which I have spent 10 years researching (it's my other hobby). My condition is rare so I actually know more about it than some doctors. One day I was frustrated with one doctor and created this: 1 Quote Link to comment Share on other sites More sharing options...
havanaholly Posted November 25, 2015 Share Posted November 25, 2015 Gina, I had wondered where you were! I m always sorry when RL delivers nastiness, but I hope your DH gets timely help at last. I'll pray for both of you. 1 Quote Link to comment Share on other sites More sharing options...
More Minis Dollhouses Posted November 25, 2015 Author Share Posted November 25, 2015 LOL Sable! Your so right about us having to become our own advocates. Its ridiculous out there! Thanks everyone for the kind words. I hope you all have a very Happy Thanksgiving! Quote Link to comment Share on other sites More sharing options...
BriJohn Posted November 25, 2015 Share Posted November 25, 2015 I'm so sorry to hear about the ordeal you both have been going through. I really can't imagine how stressful and life changing it would be to see my husband struggle so with no answers although he did have an ordeal where he wound up in the hospital and they treated us like dirt because they though he was doing drugs until they tested his urine and of course he wasn't. Turns out he has Meniere's Disease but they were't the ones who figured that out. When they didn't know what it was they said it was a panic attack, which he has never had in his life. I think it was stress induced and we dealt with learning how to eat practically salt free for a couple years. He was eventually able to incorporate salt back into his diet but he still can not have caffeine. Bouts of high stress make him dizzy and his ears ache now. His grandpa had it too but it didn't show up until he was a senior. My daughter's teacher from last year is a celiac. If she accidentally eats any gluten she'll land in the hospital. And so many things have gluten, even candy, as you well know I'm sure. At least you now know the answer and you both can/are taking control. Just not feeling helpless has got to be somewhat of a relief like you said. I will pray for you and your husband. My heart really goes out to all the kids with peanut allergies and people like your husband who have to be so very careful with what they eat. 1 Quote Link to comment Share on other sites More sharing options...
Mimajo Posted November 26, 2015 Share Posted November 26, 2015 So sorry to hear this. My prayers are with you. 1 Quote Link to comment Share on other sites More sharing options...
Myangela Posted November 26, 2015 Share Posted November 26, 2015 Keeping you in my thoughts and prayers. My daughter is having some health issues right now and we are trying to determine their source. It is very stressful, not to mention expensive. 1 Quote Link to comment Share on other sites More sharing options...
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